Stroke is the third leading cause of death and for every 53 seconds a person in the United States has a stroke. Stroke is the leading cause of adult disability and there are 4.5 million stroke survivors alive today. Having computers and online Internet capabilities for stroke survivors and their families are very helpful to them in our world today. You can sit in the comfort of your own home and find information and correspond with other members in the same situation right on your computer. Here are some great stroke support groups for not only adults, but for infants, children and young adults and seniors.
Stroke Support Group: The Internet Stroke Center
The Internet Stroke Center is an online stroke support group through Washington University in St. Louis School of Medicine for patients and families dealing with a stroke as well as professionals and students. The website features a stroke trials registry and a neurology image library. Patients can get a lot of information from this website including information about strokes, stroke diagnosis, stroke treatments, living with stroke, a caregivers section and recent stroke news. The Internet Stroke Center provides current, professional, un-biased information about strokes. This stroke support group gets their information from published accounts, meeting presentations, Internet searches and direct correspondence.
Stroke Support Group: ASA Stroke Family Discussion Boards
The ASA Stroke Family Discussion Board is a forum that you can join for free. It is designed to give patients and caregivers many health tools and communications about coronary heart disease and stroke through other stroke patients and caregivers. You will be asked to create a username and a password. Other required information is your full name, email and zip code. After you agree to their terms, you are all set to use the forum. This is a great place for stroke patients and caregivers to go to discuss topics relating to strokes. There are several categories. The first one is “Patients and Caregivers” which include forums on heart failure, high blood pressure management, peripheral artery disease, tips for caregivers and more. The second category is “Women and Heart Disease” which include forums on health care professionals, go red for women survivors, go red in your 20’s, fitting in fitness and much more. The third category is “Stroke Survivors and Family Caregivers” which include forums on read it in stroke connection, stroke survivors sharing, caregiver sharing and more. The fourth category is “Health Care Providers” which include forums on get with the guidelines, GWTG in the heartland affiliate, GWTG KY stroke quality forum and more. You can also log into this site as a guest if you would like to try it out before registering.
Stroke Support Group: Aneurysm & AVM Support
Aneurysm & AVM Support Group is a group that is for stroke survivors; their families and those who have lost loved ones to aneurysms or AVMs. Each author that writes their narrative describing their experience with a loved one and what they had to deal with as far as operative hospital experiences, patient and physician relationships and interactions, complications, financial stress and much more. There are also many stories of patients that have survived and the ordeals that they had to go through. The website was established back on April 15, 1995 with narratives about stroke patients online.
Stroke Support Group: Generation S: Young Stroke Survivors
This is an awesome site for young stroke survivors, caregivers and medical personnel. There are many categories with lots of great information for stroke survivors or anyone that just wants to know more about strokes. Some of the topics are heed the warning, hot topics, caregivers corner, survivor stories, resources and I’m a new survivor. There is so much information on this website including heart-friendly recipes, where to meet other young stroke survivors. This stroke support group has a message board, a book store and you can even get an e-buddy.
Stroke Support Group: Pediatric Stroke Network
Pediatric Stroke Network is a support group for infants and children. Childhood stroke is definitely on the rise and this is a great place for parents to meet other parents online to help cope with their situation. This site has what parents need and that is support, awareness, advocacy tips and education. When you join this stroke support group, you will be added to their on-line mailing list and this is the way parents and family members at Pediatric Stroke Network communicate. They are registered with the American Heart Association and they also have a volunteer page for parents to get involved. There is a lot of valuable information on this site.